Raising Awareness for RSD (and Ziggi's)

Raising Awareness for RSD (and Ziggi's)
The Power of Orange

Monday, May 21, 2012

A Road I Know

Have you ever asked yourself, "What next?"  Not in the bad way (we all do that) but in the good way??  I had a great weekend, storm and all!!  My Team and I hosted a garage sale on a rainy and very breezy Saturday.  Our goal was that the proceeds would fund the 1st round of plants for the garden.  So Saturday evening we trekked to Loveland and purchased tomatoes, cucumbers, squash, bell peppers, cherry peppers, jalapeno peppers, sage, rosemary, mint, cilantro, basil, and 2 hanging petunia plants.  (keep in mind that this is after the garage sale and a storm ... which elevated my pain levels, but I was able to keep them in check.)  Even dropping my iPhone and spiderwebbing the screen couldn't deter my mood.  On Sunday, we journeyed to Boulder to try to get my phone fixed.  Everything still worked, I just had to play bob-and-weave to see around the cracks.  Needless to say, I am not due for an upgrade until August and a new screen would have cost me $99 + Boulder Tax ... so I opted for a screen protector to keep the pieces from slicing my sensitive fingertips, and a new case to help it hold on a little tighter.  $40 later, I'm still in a good mood even though my niece is probably going to want to add a Band-aid to my phone when they get to town this week.  My Team rototilled the garden as I planted the herbs in the hanging pots that he made for me.  As he began to plant the veggies, I headed inside to start cooking dinner.  I was passed out on the couch before 9 last night and I hadn't even taken my Ketamine nasal spray yet.

I awoke this morning knowing that I need to take the next 3 days to conserve my spoons before the Munchkins get here.  I LOVE being on Nanny-Duty, but, even more-so right now, I LOVE that my Dad went with my Mom this time to go and get them!!  I saw on the news this morning that Kansas had about 12 tornadoes yesterday and I am grateful to not have been there to feel any of it!!  The past 2 years my Mom and I have gone to help take care of the twins and help my sister, the Bombshell, close up her Kindergarten classroom for the summer.  And both years, I had to summon up every ounce of gumption I could to withstand the spring storms for which Kansas is notorious.

Anyhooooo ... After remembering to schedule a lot of down time through Wednesday night, I started thinking to myself, "Now what?"  Surprisingly, I have energy today!!  But I know that I if I spend it, I'll be toast when my favorite 2-year-olds get here.  I made the bed, loaded and started the dishwasher, and I'll probably do something with my clothes today, although I'm not quite sure what.  I may just have a staring contest with them, but then again, I may sort and organize them ... it could happen!!  But what in the sam-hill-heck am I going to do with my brain that won't stop??  And then H. called.  We have been working together towards raising RSD awareness and funding research towards a cure for quite a few years, and the tides are turning in our favor.  (the Warrior Mama, the Bee, H., and I have been working cyber-side by cyber-side for over 2 years.)  I can't go into specifics yet but I can tell you that I am back on board (literally and figuratively) and I am ready to pick up my warrior sword and fight the good fight ... with my brain!!  Saving spoons while writing is one of my all-time favorite pastimes and I have my constructive outlet again.  (Stay tuned, things are about to get really REALLY good!!)

Despite RSD, I am still living and surviving and fighting.  I will not give up, I will not give in, I will not go gently into that good night.  I will rage against the dying of the "light"!!  I have faith that this not-so-new road will lead us to great things.  I tried to quit, not once, not twice, but 3 times, and these amazing women have coerced me and welcomed me back each time!!  I have faith that these friends for life will keep me motivated and focused ... and together, we will get the awareness and research that ALL RSDers deserve.

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