These are my rantings and dealings with a chronic pain beast known as Reflex Sympathetic Dystrophy. Come along for the ride because, honestly, I can't make this ish up!! I also hope to help other RSDers tell their stories by listening, empathizing, and validating the long roads that they have endured or are still enduring. This blog is about SURVIVORS!!
Raising Awareness for RSD (and Ziggi's)
Friday, February 24, 2012
Playing Catch-Up, Staying Focused, Drinking Coffee
Today I am off to play Catch-Up. I am trying to keep a positive outlook here because my leg is still pretty sore but I think my foot could probably handle a shoe today; and I have things to do!! Like … go see my Dad, go see my Munchkins, go to the bank, do laundry, etc. My Team and I were supposed to go out dancing with friends tonight, but ... um no!! Haha ... Some battles are just not pickable today. I love my friends, but when alcohol and rock music are involved, I become more of a liability than an asset … but ... have fun tonight gang!! :D
I hate winter. Period. End of story. Making plans is almost impossible; predicting the temp swings is a best-guess scenario; snow and ice scare me; as far as I’m concerned, the wind might as well be named Jack The Ripper; recovery time always varies, and life still goes on even when I cannot. It SUX!! With me or without me, life … goes … on … and I am in a constant state of Catch-Up because of it. The good news is that summer is coming ... eventually, and my new 2% Ketamine nasal spray is helping with my sleep issues so I actually feel a little bit rested today.
However, I also feel a little more scattered brained than usual. Not foggy, not funky, not fuzzy, not cobwebby … just not “all there.” So I started making my lists. I have 1 list for getting ready (shower, make-up, hair, clothes, teeth), 1 for what I need to have with me when I leave the Oasis (meds, cane, coat, keys, sunglasses, Go-Bag, dog), 1 for what I need to get done back in town (bank, Munchkins, dog, laundry), and 1 for the grocery store (I already told you about that adventure … “Jenn’s Bag of Tricks - Grocery Shopping”). I will say that the coffee is helping me stay focused … or so I keep telling myself!! ;) I also have to say that the lists help keep me focused too. I spend less time saying "ummm ... now what" and more time doing the next thing on my list. I even have an order to getting ready that allows me to rest in between activities. Shower, have a cup of coffee and sit. Get dressed, sit, check emails and have another cup of coffee. Dry hair, have another cup of coffee. Straighten hair, let the dog out, refill my coffee cup, sit, take meds. Put on make-up, stretch, make another pot of coffee. Brush my teeth. As long as I keep moving, slowly and deliberately, and with proper rest stops, I can keep catching up!! But I must warn you ... don't rush me in the mornings!!! There is a madness to my methods and I try to make them work for me!! Throw a monkey wrench into my routine and only God can save you from my frustration and pain ... just sayin!!
I have faith that life goes on, with me or without me, in good ways and bad, it will always go on!! I have faith that, although I will never be totally caught up (acceptance), I will always try!! I hate feeling left out of anything but I hafta hafta hafta do what’s right for my body. RSD, you still suck and I still hate you and I will always hate you, but I accept you and respect the certain amount of control that you have over my body. But I also have faith that you will never ever ever take my heart and soul ... and mind!! I will keep fighting you. We will forever be arch enemies. We will each win battles, but you will not win this war!! Why?? Because I have faith ... and coffee!!
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Jenn,
ReplyDeleteI just came over to read your blog for a sec. I know how hard it must be with the pain you endure. I noticed you follow our blog, thanks. Kamis dad has RSD and we know the results of it and how it affects the human codition and the one you love. Praying for you. I can only imagine how the winter in colorado affects you. Thanks for the blog and educating more about the disease. Seems like my dad goes to the doctors and they dont want to have anything to do with him because he has RSD, which is sad! They just get him comfortable and go through the motions. Take care and keep catching up.