Raising Awareness for RSD (and Ziggi's)

Raising Awareness for RSD (and Ziggi's)
The Power of Orange

Friday, April 26, 2013

Now I Get To Do Some Stuff

Day 2 post-treatment and I feel like dancing around my house to Katrina and the Waves' song I'm Walking On Sunshine!!  (And don't it feel good???)  But I won't.  I am so not doing anything dumb yet!!  Spraining my knee the day after my last set of blocks back in October has me acting a little more responsible ... and a little more paranoid this time.  In all honesty, I haven't felt this great this soon after treatment in over 4 years, and I really don't want to blow it!!  I want to have an amazing summer and that has to start with a smart start to my spring and my spring starts now!!  The snow is finally gone and my little section of Colorado is back into the 60's with our sights set on the 70's this weekend.  My doors and windows are open, my ceiling fans are twirling, and I'm blowing out the stink of the last 4 weeks!!  I'm doing laundry (just the washing and drying part because folding constitutes "dumb" in my book) and trying to catch up on some writing.  Off to a smart start ... CHECK!! 

As much as I despise the way large doses of Ketamine make my head and tummy feel, the benefits that I get in the pain relief department and the eradication of my depression are enough to make me the damn drug's poster child!!  If you're an RSDer and haven't looked into some form of Ketamine treatment yet, I strongly urge you to start researching your possibilities!!  Take it from General Jenn, the 21+ year pain warrior, of all of the drugs that have been administered into my system, Ketamine has been my diamond in the rough!!

And now ... I get to make plans to do stuff again.  I get to look forward to stuff again.  And within the last 48 hours, I already have lined up some stuff ... some fun stuff ... some good stuff ... some awareness stuff ... aaaaand some other stuff, but I'll mix it in with some of the good stuff to create some balanced stuff.  YAY STUFF!!!

The most important of all of this stuff that I get to do is plan my awareness event and celebrate my 22nd anniversary of surviving Reflex Sympathetic Dystrophy on Saturday, June 1, 2013.  This is the day that I will have had this bat rastard of a disease for half of my life.  This is the aptly and duly named FURSDay!!  This is the day that I'll ask every single one of my friends to put something orange on their furbabies, take a picture, and tag me in it on Facebook.  This is the day when I will gather with the majority of my favorites and give the double middle finger salute while shouting "FU RSD" over and over (even in front of my Mom).  Because this is the anniversary of the day when my life was tragically altered just by slamming my thumb in a refrigerator door.  This is the celebration of 8,030 days that I didn't quit or give up, even though I desperately wanted to throw in the towel on some of those days.  This is the day when I will have fought against depression and anxiety for 192,720 hours.  This is the day I will have fought through the mind-blowing pain for 11,563,200 minutes.  (yes, I used a calculator)  This is my day to own!!  I may have full body RSD, but full body RSD does not have me!!  I may have to do stuff differently, but I can still do stuff!!  And this particular anniversary will be the day that I turn the page and begin a new chapter.  I have no clue what it's title will be or even what will get written on it's pages, but I can't wait to find out!!  

I have faith that I will continue to fight and celebrate the wins, even the little ones.  I have faith that I will use my renewed lease on life to do good stuff, for me as well as for the ones I love.  I have faith that I will keep walkin' on sunshine ... for the next 5 months anyway ;) ... HAPPY SPRING!!  GO DO STUFF!! 

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