Raising Awareness for RSD (and Ziggi's)

Raising Awareness for RSD (and Ziggi's)
The Power of Orange
Showing posts with label Crazy Sock Day. Show all posts
Showing posts with label Crazy Sock Day. Show all posts

Wednesday, January 23, 2013

Mission/Obsession ... I've Heard It Both Ways

When does a mission become an obsession? Well, when your actual birthday falls within a week, either way, of the Smiling Warrior's Crazy Sock Day and you're more excited about CSD than you are about your own birthday, you have joined in the ranks of the obsessed with Houdini and myself!!  Real quick, I would like to give a huge shout out to the birthday boy, my brother, Houdini!!  I would also like to thank him for not wearing his Crazy Socks today, like he had wanted!!  I had to bribe him to hold off!!  So today he will be sporting a Superman t-shirt under his button-up Oxford.  He called me this morning to tell me that he's been practicing ripping his shirt open like Clark Kent.  In my eyes, this just means, "mischief managed."  In other words, crisis averted and socks saved for a day!!

It is true though.  Houdini came over last night to get his bribery birthday gift and we had a long talk about getting older.  For exactly 1 week out of every year, I am only 13 years older than him.  So when he talks about "getting older," I laugh at him.  Not with him, at him!!  Or at least I used to.  Today he turns 30 and he has finally realized that age is just a number.  As he was leaving last night, he turned to me and asked, "Is it wrong that I'm more excited about Crazy Sock Day than I am about my own birthday?"  I told him, "Nope, it's not wrong.  It's in your makeup."  With that, he nodded in agreement, said, "Well, I am my sisters' brother," and he closed the door behind him.

The 3 of us (including our sister, the Bombshell) live for being behind the scenes.  We love to coach, teach, encourage, promote, and support the greatness of others.  We don't want the spotlight for ourselves, but we want to know that we played a large part in getting someone else there who deserves it.  I guess you could categorize this as "learned behavior." (Thanks Mom and Dad!!)  The Bombshell has the Munchkins and her kindergartners, Houdini has his 5th graders and his volleyball girls, and I have all of the above (by proxy) and ... raising awareness with The Smiling Warrior!!

With that being said, tomorrow is the 3rd Annual Crazy Sock Day!!!!!  This is the day that we all show our support and love for the Smiling Warrior and raise awareness for Reflex Sympathetic Dystrophy and GastroParesis by wearing the craziest socks we can find and posting the pictures to Facebook.  As of this morning, 1867 people have joined the event page!!  Keep in mind that this number does not include all of the schools, offices, and other non-Facebookers that are participating tomorrow.  If you haven't joined already, now is a great time to become a part of history ... The largest social media awareness event to date!!
Go here to join:
https://www.facebook.com/events/102271203267678/

We have also created a community page where everyone can post their sock pictures tomorrow.  Go here and give us a "Like" and be a part of blowing up FB with crazy sock pics:
https://www.facebook.com/CrazySockDay

If you're still not sure what to do or why you're doing it, check out this video from last year's event:
http://www.youtube.com/watch?v=PHYFugf_UU4

If you're a Twit-terer ;) you can use the hashtags #CSD3 #RSD/CRPS

I have faith that Houdini will have a great birthday, now that he has his new t-shirt as a distraction.  I have faith that I will rest up and save my spoons today so that I am ready and raring to go bright (dark) and early in the morning for CSD3!!  I have faith that we will all pool our efforts to give the Smiling Warrior something to really smile about tomorrow!!  RSD and GP aren't contagious, Awareness is!!  Help us infect the world with knowledge and understanding of these debilitating diseases!!





 

Thursday, January 10, 2013

Ratting Out Mommie

Hi Ho!!  Kiva The Dog here!!  Did you know that my Mommie is nuts??  If you didn't know that, now you do.  If you had suspicions about it, I am here to confirm them.  If you already knew this little tidbit of info, let me just tell you now that, "It's gotten worse!!"  For 3 days and 2 nights Mommie didn't sleep.  She rested a little here and there, but there was zero sleep involved.  And what's crazier than that is I honestly can't remember if she ate during all of those awake hours.  Oh wait!!! ... she made a four egg omelette yesterday afternoon ... after she finally finished the project that she bled, sweat, cried, and spent spoons on for those 3 days.  She ate 3 eggs of it and shared the rest with me ... and then she turned off her phone and slept!!  For 11 hours she got her normally interrupted nights' sleep!!

What has Mommie so motivated??  Duh ... Crazy Sock Day 3!!  It's exactly 2 weeks away!!  Last year Mommie compiled most of the pictures that were posted on Facebook so that she could make a slideshow for the Smiling Warrior and so she'd have something to send out to the schools and media for this year to promote the day and the awareness that needs to be raised.  It took her 50 weeks to get that slideshow finalized and published, but she did it!!  And the Warrior Mama said that it put a smile on the girl's face!!  Considering that she was in the hospital getting an NG tube put in (again), Mommie took that as the greatest compliment ever!!  (The rumor is that the Smiling Warrior is being released today ... perfect timing, Mommie!!)

Mommie warned me that the next 2 weeks will be a lot like the last 3 days ... Crunch Time!!  Time to get everyone that's involve-able, involved.  It's one thing to just take part in the day, it's a completely different thing to garner the needed support to pull the day off with style!!  The Smiling Warrior deserves it, RSDers and GPers deserve it, the Medical Community needs it, and the families need to know that their Warrior is not alone, and neither are they!!

I have faith that Mommie will put every spoon in her arsenal to good use for the CSD3 campaign.  She's not The Crazy Cripple for nuthin'!!  I have faith that she'll rest in February, and I have faith that I will faithfully stay by her side to remind her to eat, sleep, laugh, love, and play ... it's just up to her to recognize my efforts!!  Go run your errands, Mommie, before the bad weather sets in ... and then ... It's nap time!!

If you'd like to participate in CSD3, go to: https://www.facebook.com/events/102271203267678/?fref=ts

To see the video that Mommie made, go to: http://www.youtube.com/watch?v=PHYFugf_UU4

Peace out!!!  I just found my tennis ball!!!