Diary of a Crazy Cripple & Other RSD Stories

These are my rantings and dealings with a chronic pain beast known as Reflex Sympathetic Dystrophy. Come along for the ride because, honestly, I can't make this ish up!! I also hope to help other RSDers tell their stories by listening, empathizing, and validating the long roads that they have endured or are still enduring. This blog is about SURVIVORS!!

Tuesday, December 10, 2013

I Didn't, But You Do

I know that I promised you all Part 2 of my detox experience, but life has required that I pause before I begin the next round. It happens....

Thursday, November 21, 2013

Round 2, Part 1

Round 1 definitely goes to Toxic Blood. I lost that match and it was 93% my fault. Yes, I am owning this defeat. I'm not proud of it,...

Tuesday, November 5, 2013

Be Blessed ... Like Me!!

RSDers around the world get frustrated easily. We have this "rare" condition/disorder/illness for which there is no cure. For mo...

Tuesday, October 29, 2013

Finding Happiness in Hugs

You will never hear me complain about the amplified pain that is brought on by hugs. Never!! I may get snarky about them in a humous way, ...

Tuesday, October 15, 2013

General Jenn vs Toxic Blood

Soooo ... Maybe things are a little worse than I've been letting on recently. Yes, I'm down to 115lbs; yes, I throw more nausea pil...

Friday, September 27, 2013

Tougher Than Patton, I Am

How do you cope with the anger, depression, fear, and tears associated with new or reoccurring health issues? Do you give into the anger an...

Friday, September 20, 2013

Putting Myself On Injured Reserve List

If you've been watching the news anywhere in the whole wide world for the last 8-9 days, then you have heard about my little hamlet, Lon...

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What is RSD/CRPS?

Jenn: I have had RSD for over 20 years. It started when I got my right thumb slammed in a refrigerator door and it has spread to encompass my body from my neck to my toes. You know how it feels when you hit your funny bone? Multiply that by 20, dump a can of gasoline over your skin and strike a match. THAT is my "one" on the pain scale of 1-10. A "flare" feels like an infected razor burn plus a 6 or above on my pain scale. I am no longer able to work a regular job with regular hours. I coach volleyball during the summer months, hide from the winter months and cuss repeatedly during the fall and spring months. I choose to fight my RSD with humor, wit and charm ... as often as possible, anyway. I also fight through advocacy. I listen, validate, empathize and help other sufferers re-tell their stories of survival. My motto: "If it weren't for the things that I have been through in my life, I wouldn't be the person I am today ... and I like who I am today."

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